Patient education and resources to help you feel more informed and prepared as you navigate endometrial cancer.
Information to Help You Navigate Your Care
A diagnosis of endometrial cancer can bring a lot of questions. You may be wondering about your treatment options, what your biomarker results mean, how new therapies such as immunotherapy may fit into your care, or how treatment could affect fertility and future plans.
This educational resource was created to help you better understand these topics and prepare for conversations with your healthcare team. Explore the videos, patient-friendly tools, downloadable resources, and trusted organizations below to find information that can help you make informed decisions that are right for you.
Remember: You don't have to navigate these decisions alone. Your oncology and healthcare teams can help you understand your options and determine what is right for you.
Voices From the Patient Journey
Three women. Three experiences. Shared insights for care.
Hear directly from Nefa-Tari, Dana, and Naomi as they share their experiences with endometrial cancer—from recognizing symptoms and navigating diagnosis to treatment, survivorship, fertility, and finding their voices in care.
Through these personal stories, explore the experiences that can shape how patients understand their diagnosis, communicate with their care teams, and navigate the challenges that extend beyond treatment. Use these perspectives to spark conversations and consider how patient experiences can inform more responsive, person-centered care.
Nefa-Tari Moore
Finding Her Voice in Care
Nefa-Tari shares her journey through diagnosis, treatment, recurrence, and survivorship—and the importance of being heard, asking questions, and understanding the decisions that shape her care.
Video 1 — I Knew This Wasn’t Normal
At 33, Nefa-Tari noticed heavy bleeding that was unlike her normal cycle. She shares how trusting her instincts and continuing to seek answers ultimately led to her endometrial cancer diagnosis.
Video 2 — I’m Part of the Care Team, Too
Nefa-Tari reflects on navigating treatment and side effects and explains why patients should be included in conversations about their care, feel comfortable asking questions, and receive information they can understand.
Video 3 — Finding Answers, Finding My Care Team
After recurrence and a change in oncologists, Nefa-Tari found a care team that made space for her questions. She also shares how genetic counseling and learning about Lynch syndrome shaped her understanding of her cancer and survivorship.
Dana Mathews
Listening to What the Body Is Saying
Dana reflects on recognizing changes in her body, navigating life after treatment, and rebuilding trust in her own voice while advocating for care that considers the whole person.
Video 1 — Different From My Normal
Dana noticed changes in her long-standing pattern of heavy, irregular periods, along with bloating and fatigue. She shares how seeking answers ultimately led to her endometrial carcinosarcoma diagnosis at age 40.
Video 2 — The Parts of Cancer You Can’t See
Dana describes the lasting effects of cancer treatment—including brain fog, fatigue, and pain—and the challenges of coordinating care while managing work and everyday life.
Video 3 — Trusting My Voice Again
Dana reflects on how feeling dismissed affected her ability to trust her instincts. She shares how asking questions and building a partnership with her clinicians helped her find her voice again.
Naomi Aziz
From Patient Experience to Advocacy
Naomi shares her experience navigating diagnosis, treatment, fertility decisions, recurrence, and survivorship—and how those experiences inspired her to advocate for greater awareness and more patient-centered care.
Video 1 — I Needed to Know Why
At 27, Naomi sought answers for prolonged, heavy bleeding while living in a rural community where accessing care could require hours of travel. She shares the events that led to her endometrial cancer diagnosis.
Video 2 — Fertility Was Part of My Care
Naomi describes facing fertility and family-building decisions alongside cancer treatment. She explains why these conversations should happen early and compassionately, without assuming those goals no longer matter.
Video 3 — Turning My Experience into Advocacy
After years of treatment and recurrence, Naomi turned her experiences into patient advocacy. She shares her hopes for greater awareness, research, and attention to the needs of younger patients and patients of color.
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Resources to Help You Navigate Your Care
Access downloadable guides with practical information to help you prepare for conversations with your care team, understand your options, and feel more informed throughout your care journey.
Fertility & Treatment
Learn how endometrial cancer and its treatment may affect fertility and explore questions and options to discuss with your care team.
Genetic Testing
Learn about genetic testing, why it may be recommended, and what to discuss with your care team about your results and treatment options.
Preparing for Physician Visits
Get practical tips to help you prepare for appointments, organize important information, and have productive conversations with your care team.
Trusted Resources for Your Endometrial Cancer Journey
There are many organizations and resources available to help you learn more about endometrial cancer, treatment options, clinical trials, fertility, and emotional support.
A patient-focused organization dedicated to advancing endometrial cancer research while providing education, advocacy, and support to help patients and families feel informed and empowered throughout their cancer journey.
A trusted source for easy-to-understand information about endometrial cancer, including diagnosis, staging, treatment options, side effects, and life after treatment.
Provides patient-friendly information about gynecologic cancers, treatment, and what to expect during care, along with tools to help patients find gynecologic cancer specialists.
Offers patient-focused education designed to help people with endometrial cancer understand their treatment options, participate in care decisions, explore clinical trials, and advocate for themselves.
Provides information and support for people affected by hereditary cancer risk, including resources on genetic testing, biomarkers, Lynch syndrome, and treatment options for endometrial cancer.
Provides patient-friendly resources explaining immunotherapy, biomarkers, treatment options, side effects, and clinical trials, helping patients better understand how immunotherapy may fit into their care.
In Collaboration With
Patient vignettes and tools featured in this activity were developed in collaboration with the Endometrial Cancer Research Foundation, a nonprofit organization dedicated to endometrial cancer research, advocacy, awareness, and education.
We gratefully acknowledge the Endometrial Cancer Research Foundation (ECRF) for partnering with us to recruit patient participants and inform the development of patient-facing tools used in this educational activity.
About This Educational Program
Developed by QDcme in collaboration with oncology experts. Supported by an independent medical education grant from GSK. The grantor did not influence the content.
This program does not provide CME/CE credit and is not a substitute for advice from your healthcare team.
